Here are a few FAQs that you'll probably be wondering about...

What is HIBM?

• HIBM is a genetic disease that is found in all communities, but is most common among people of Middle Eastern Jewish heritage. It is a progressive degenerative disease that causes the arm and leg muscles to slowly stop working. As a result of the identification of the gene that mutates into HIBM, a painless cheek swab of saliva allows us to test for HIBM, which results in an essential tool in genetic counseling. However, there is currently no cure for HIBM.

Why is it important to know if you are a carrier of the recessive gene HIBM?

• You may be a carrier. It is important that couples are tested before starting a family. When both parents are carriers, their children will be carriers and each child will have a 25% chance of having this disease.

What is Neuromuscular Disease Foundation (NDF)?

• NDF is a non-profit organization whose goal is to find a cure for neuromuscular diseases, including Hereditary Inclusion Body Myopathy (HIBM).

What is NDF’s goal?

• NDF's goals are to raise awareness, educate the public, and make a real difference in the lives of those facing HIBM. By supporting the Neuromuscular Disease Foundation, you will help us move more quickly toward the development of an effective treatment of HIBM.